We made it home. Thank you American Airlines for accommodating us so quickly. We landed in DFW at 8:20 am, after possibly the longest night of my life.
I have been at the hospital since about 9:20 this morning. Let me just explain how we got here.
Dr Ruxer, the oncologist, came in yesterday and told Mom and Dad that the mass around her small intestines is tumor, not infection. This tumor is crushing the small intestines, and absorbing all the nutrients. This is why, no matter how much she eats and drinks, she is dehydrated and loses weight. It's simply feeding the tumor.
The tumors being this advanced, we are out of options. She is in palliative care at the hospital, with a possibility of being transferred to hospice. Maybe at home, maybe at a facility. I have a feeling God will make that choice for us. We are merely trying to keep her comfortable. Rather than 3-6 months, we were told that she has days to weeks, most likely just a few days. She WILL NOT starve to death, the tumors will just make her body shut down one system at a time.  It will be very painful for her.
I spoke to Dad last night after spending the day at the Magic Kingdom. When he told me the news, Pete and I felt we had no choice but to come home. Actually, Pete made that decision all by himself. I was frankly in no shape to make any decision bigger than placing one foot in front of the other.
I'm really glad we are here. The 2 days we had of vacation were wonderful, and I actually don't regret going. We needed it. We are going to need it more after the next week or so.
I had the chance to sit with Mom for a long time today, and just talk. Lots of people are stopping by the hospital, so we're getting a lot of opportunities to reminisce. Lots of tears, on all parts.
Mom is OK with this. Remember, she gets the good part. Yes, she has to suffer for now, but she gets the good stuff pretty quickly. We are the ones who will have to suffer for the rest of our lives without her. She told me a few weeks ago that she was ready.
Last night, while Pete and I were frantically trying to get home, Mom was given the opportunity to witness to one of her very dear friends. She has been trying to witness to this lady for about 12 years, with no success. Last night, Regina became a Christian. Regina, if you are reading this, please know that I am SO PROUD of you for this decision.
I feel like this was maybe the "last thing" Mom was supposed to do before she goes.
Mom is in pretty good spirits. She's OK with crying, just not hysterics. Most of us aren't hysteric-prone anyway.
The rest of this week is REALLY going to stink though. For one of the first times in my life, I am praying that God will just slow down the clock, let me get one more conversation, one more hug or kiss, one more chance to tell her how much I love her.
Maybe one day the hole that is in my chest will heal, but for now it feels pretty much like a permanent fixture. I'm tired of crying and hurting all the time. I have no choice though. The tears just keep coming, and the hole just keeps throbbing.
I know that I ask this every time, but please continue to pray for us. My grandparents are dying of grief over their baby girl. My daddy is losing his soul mate. My uncle is losing his big sister. Eric, Hay, and I are losing our mommy. Pete adores my mom, and so does Robert (Hay's BF). I think Pete has cried as much as I have.
Through it, we have a peace that she's going to be OK, that this IS part of God's Perfect Will. It's us that we're worried about.
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Give Donna our love.
ReplyDeleteNic, my heart is breaking for you. My mom will be there on Friday and we'll come later. I'm praying that your conversations are LONG and that time stretches. It is so cruel and so kind that you know what's coming and how quickly. We love you and you're in my heart tonight.
ReplyDeleteNicole,as I read this tonight, it took me back to that day in April when I lost my own mom, one day after her 57th birthday, I dont know if you remember her or not, but she loved your mom too. after she passed, i had cried so much, that one evening, I did something I didnt think I would do, but I asked God WHY? why not a killer or dope fein, anyone but my mom!? and like those bigticker things in NY, it came to me so clear.."Because she did what I sent her to do" "Now it is her time to enjoy the fruits of her labor", "She is now at peace, enjoying heaven with the Lord...what is better than that. That Sunday, one of the deacons wives who had lost a sister, wrote something to me in a card, that has always stuck with me, and I used it to hold on too, still do...she said that one day I would be able to look back remember and talk about my mom, with laughter, instead of tears. it's been 18 years...I do remember and tell my grandchildren about her, and laugh, the hole is smaller, I still miss her, I still think of her when something happens and I want to share it with my dearest friend, I often look up to heaven and say, Lord tell her about my day...and that I still love and miss her.
ReplyDeleteSo, my prayer for you and your family, is that she passes in peace, knowing she did all the Lord wanted her to do, and one day, you will remember her with laughter, and the hole in your heart will be smaller...i'm sorry I've written a book here,,,just felt it on my heart to say.
Tell her that I love her, please.
Nicole,
ReplyDeleteI can't imagine how hard this is for your family. I'm so sorry you're going through this. But how wonderful that your mom was able to witness to her friend and see her become a Christian! Brian and I will be praying for you and Peter and your family.
Amanda Pikkula
Thank you for sharing this blog with us. I met your mom through Stampin' Up! and she is a wonderful woman. I do pray that she feels no pain, or less pain. I wept when I read about slowing down time. I lost my Mom two years ago when I found her in her home. I did not get to say goodbye and it is so hard. Tell her over and over how much you love her. I know how proud she is of you and your siblings, she talked about you every time I saw her. May you all find peace.
ReplyDeleteNic, dont think i can say it any better than your friend Nora did so i wont try. When my momma went to heaven I felt just like you do now.I wanted it to be over but also wanted that one last whatever. A very precious friend gave me this advice while we were in limbo with momma and i hope it will help you as much as it did me. She said "You are human and because God made you, He already knows that. Tell God you need something, anything to help you get thru this time with a sense of peace and to know that He is in complete control." He sent me exactly what I needed then and i know He will send it for you now. It probably wont mean a thing to anyone but you, but thats ok. He sends "it"as a gift to us when we need it most.
ReplyDeleteAs blessed as you are to have her for your mom, i know she feels blessed tenfold to have the three of you and your daddy. She loves you each so much.
I love your mom and always will. We have had some crazy times bringing up the six of you! We always said we felt like Lucy and Ethel.(but i dont think Roy or your Daddy ever much liked the idea of being Ricky or Fred)
It amazes me to see you so grown up but to me and Livi you will always be Nees-cole.
I love you sweetgirl, and want you to know that we are praying for Gods perfect will.
Patti
It has blessed me to read the comments and to see how much your mother is truly loved by her friends and family! I know that is the most difficult, life altering experience that you will ever have faced. I pray God's sustaining grace on you, Pete and your family as you spend time with Donna as she is saying her goodbyes to her earthly family. We love you guys so much, and we are extremely sad that you are going through such pain!
ReplyDeleteMona
Nicole, I just now found out about this blog, and more importantly, your mom's condition. PLEASE pass along my love. I know it will be so hard to live without her, but as you said, she gets the 'good stuff' soon. Praise the Lord that Regina has believed through this!
ReplyDeleteMrs. Donna, please know that you are in my prayers. I hope that the pain will be minimal and that you can enjoy your family and friends without distractions during this time. You are an incredible woman, and I'm so glad I had the opportunity to get to know you during my short time in Fort Worth. Thanks for being such a great example to me.
Nicole,
ReplyDeleteWe've never met but I'm a friend of Liz Fischer's.
My heart truly breaks for you and your family. While my family has experienced cancer and it's destruction, never to the extent of your family.
Please know that, even though I don't know you, I pray for you and your family. I pray that your mom's pain is eased and that she finds peace. I pray that you and your family's pain and grief subsides and is instead filled with memories and love for your mom.
I just stumbled upon this poem today and I can't help but want to share it with you.
Epitaph by Merritt Malloy
When I die,
Give what's left of me away
To children
And old men that want to die.
And if you need to cry,
Cry for your brother
Walking the street beside you.
And when you need me,
Put your arms
Around anyone
And give them
What you need to give to me.
I want to leave you something,
Something better
Than words
Or sounds.
Look for me
In the people I've known
Or loved,
And if you cannot give me away,
At least let me live on in your eyes
And not on your mind.
You can love me most
By letting
Hands touch hands,
By letting
Bodies touch bodies
And by letting go
Of children
That need to be free.
Love doesn't die,
People do.
So, when all that's left of me
Is love,
Give me away.
Nicole, I hope your family finds peace and solice.
Maria
what a beautiful poem, thank you for sharing that...I know it is for Donna's family, but it really touched my heart as well.
ReplyDeleteI was checking in, to see how things are going.
I actually wanted to call, but realized I dont have your phone number...I did have donna's but not sure what I did with it, I changed cell phones, and lost alot of numbers I had in there. anyways...I just wanted to say I love Donna, and today out of the blue, I remembered Donnas laugh, from when we were kids..funny a thing like that would pop into my mind. ok..going back to bed...goodnight.